PTEN UK and Ireland Patient Group

PTEN UK and Ireland Patient Group (PTENUKI) is a registered charity supporting people and families affected by PTEN Hamartoma Tumour Syndrome (PHTS). Founded by families with lived experience, it provides support, education, advocacy, counselling, grants, events, and peer connections. The charity also raises awareness, promotes earlier diagnosis, and supports research to improve treatment, care, and quality of life for those affected.