Rare Patient Voice

Rare Patient Voice, LLC was founded in 2013 to provide patients and family caregivers a chance to be heard through participating in all types of research. RPV was built on a foundation of direct connections and word of mouth. We have assembled a panel of 185,000+ through attending patient meetings and conferences, by working with advocacy groups through a robust referral program, and through social media. We cover 1,500+ conditions, both rare and non-rare, and spa